10 Months Old

Longer out than in! Sophie turned 10 months old on Tuesday and is suddenly seeming so much older. It's hard to remember how old she really is because she is still so tiny, but she's doing lots of big girl things now and trying hard to keep up with her big brother.

Big girl!

We went to see her pulmanologist this week for a follow up after her diagnosis and she weighs 14.1 lbs and is 27 inches long. He was satisfied with her and said she was where he expected her to be: not fabulous but doing ok for now. He is still holding off on the lung biopsy, but is doing a surfactant gene blood test on her to rule out those issues and is working on getting her the synergist shots (RSV vaccine) that kids with lung diseases are usually covered for by insurance. We see him again after her first birthday in December, barring any illness before then.

Little Miss Piggy...I've never seen a child get this messy while eating!

She has 5 teeth now and is working on three more. Her two top front teeth are in and she looks so much older now! She has discovered that she can crawl around the house now and whenever I loose her, I just follow her oxygen tubing. Ha! I am keeping her on O2 most of the time at home, to give her a rest from breathing so hard. Apparently this helps NEHI kids to grow better and quicker. She is trying to stand on her own and pulling up on low tables and tries to climb everything. She wants to be moving constantly now!

And boy, does she LOVE table food! We are filling her up on fatty protein, as per her GI doc's instructions, so peanut butter, cream cheese, yoghurt, cheese and meat are what I usually offer her. I am trying to keep up with veggies too (although the doc said these aren't as important for growth), as I want her to develop a taste for them.

She is really good about not pulling at her O2 tubing and manages really well with it.

She sleeps pretty well at night and takes two naps a day. However, she still wakes at 10 pm and about 3 am to eat. I'm kind of over  that! The doc said that if she wakes, I need to feed her, so no crying it out yet. Oh well.

First time we let her off her bath chair to move around in the bath. She was thrilled!

Generally she is a very content and sunny little girl. Jack is loving that she is responding to him more and they often chat away to each other and play nicely together. They both love it when I go to get him in the morning and let her sit in his bed with him for a while. So sweet. I pray they will always be close and love and protect each other.

Happy 10 months little Sophie Joy!